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The Importance of Diversity of Supply in Rare Diseases Markets

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Dr Rowen presented the results of her recent paper “Eliciting societal preferences for burden of illness, therapeutic improvement and end of life for value based pricing”, co-authored with other members of the Department of Health Policy Research Unit in Economic…
Dr Rowen presented the results of her recent paper “Eliciting societal preferences for burden of illness, therapeutic improvement and end of life for value based pricing”, co-authored with other members of the Department of Health Policy Research Unit in Economic Evaluation of Health and Care Interventions (EEPRU) at the University of Sheffield.
Dr Rowen presented the results of her recent paper “Eliciting societal preferences for burden of illness, therapeutic improvement and end of life for value based pricing”, co-authored with other members of the Department of Health Policy Research Unit in Economic Evaluation of Health and Care Interventions (EEPRU) at the University of Sheffield. The paper uses evidence from a large online discrete-choice experiment to measure social preferences for distributing gains from health care to patients based on the severity of their illness, the size of the QALY gain received by each patient and whether patients are at the end of life. Recipients of the survey were asked to indicate which patient groups the NHS should prioritise, enabling the authors to calculate the strength of the social preference for providing health care to the sickest patients.
The paper is intended to inform the proposed changes to NICE’s methods in 2014, potentially replacing the existing system of QALY multipliers for end-of-life patients with a more detailed system of burden of illness weights derived from the results of research by Dr Rowen and her colleagues. The presentation summarised the research and considered how the results could be used to produce weights that could be applied as part of NICE’s new system of value based assessment.
Dr Rowen is a health economist at the School of Health and Related Research at the University of Sheffield. She specialises in measuring and valuing health data and quality of life, in particular the development of condition-specific preference-based measures and mapping.
The slides for this presentation may be downloaded by clicking here: http://www.slideshare.net/eepru/survey-presentation-for-ohe-seminar-30793315
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