Carer QoL
Capturing the lived experiences of informal care in acute leukemia
20 November 2025
Providing informal care to someone living with acute leukemia imposes a severe multidimensional burden, reshaping relationships and affecting mental health, physical health, career, finances, social activities and more.
Inequalities in Dementia: Unveiling the Evidence and Forging a Path Towards Greater Understanding
26 June 2024
Our literature review suggests that there are more than 100 inequalities impacting on people living with dementia and their carers across multiple characteristics, circumstances, and in various parts of the health and care system. However, the current low availability and quality of data is a major barrier to accurately measuring these inequalities. With the expectation that 1 in 2 people will be affected by dementia during their lifetime, there is a pressing need for further research to inform future policy, research, and service interventions.
Modelling Spillover Effects on Informal Carers: The Carer QALY Trap
19 October 2023
Exploring the carer trap and its implications in health technology assessments. Our opinion piece discusses the impact on informal carers’ quality of life and how it…
Caring about Carers: Improving Consideration of the Burden of Informal Caring in HTA
11 April 2023
Through a three-part webinar series, commissioned and funded by Roche, OHE has explored the burdens on informal carers when providing unpaid care for loved ones.
Including Carer Quality of Life in Health Technology Evaluation: Are We There Yet?
10 March 2022
Carer quality of life impacts can be included in health technology evaluations, however little guidance is provided. NICE considered providing more guidance as part of their…