Julia Vitarello

n 2016, Julia’s daughter, Mila, was diagnosed with a rare fatal genetic condition called Batten disease. In a race against time, Julia drove an unprecedented collaboration between scientists, clinicians and regulators which led to the development of her daughter’s treatment, milasen—the first ever drug tailored to a single person. Since then, Julia has led an international movement to get from ‘Mila to Millions,’ turning her daughter’s groundbreaking story into an entirely new field of individualized medicines. Julia speaks regularly around the world, engaging academics, biotechs, governments, regulators, payers and families alike.