Search results for: Systemic Conditions

Ethical and Economic Issues in the Appraisal of Medicines for Ultra-rare (or Ultra-orphan) Conditions

13 January 2020

…for medicines for more common conditions, may not be appropriate for medicines for ultra-rare conditions. Previous OHE research on availability and access to medicines for rare conditions (also known as…

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Green Healthcare: Are We Asking the Right Questions?

11 September 2024

…empower individuals to make meaningful sustainable decisions, due to systemic constraints such as resource limitations and time pressures. Unfortunately, this leads to missed opportunities for small changes that could have…

Ethical and Economic Issues in the Appraisal of Medicines for Ultra-Rare Conditions

1 January 2020

…ethical and economic challenges faced by medicines for ultra-rare conditions, with particular reference… In light of concerns that not all medicines for ultra-rare (also known as ultra-orphan) conditions are appraised…

Individual, Health System, and Societal Impacts of Anti-seizure Medicine Use During Pregnancy

23 January 2024

…those recommended for use by the NHS, remains uncertain or limited to a subset of the potentially impacted conditions. We aimed to quantify the economic impact associated with conditions that…

Advancing Rare Disease Care: Challenges and Key Issues

28 February 2025

…captures about 1800 rare conditions – accounting for only around a quarter of known rare diseases. About 95% of rare conditions lack an approved treatment. But capturing and tracking patient…

H.R. 3 is the Wrong Policy for the Wrong Problem

10 September 2021

…not address the systemic problems with the US healthcare system. What is the problem in US health care? The US is recognised as providing rapid access for many citizens to…

Skin Disorders

1 June 1973

…conditions which led to their sufferers being stigmatised as unclean and dangerous. However, these conditions are rarely seen today and furthermore they are more properly classified as systemic infectious disorders….

New Seminar Briefing: Delivering an Outcomes-based NHS: Creating the Right Conditions

2 March 2017

…services across England. Just published is a new OHE Seminar Briefing entitled: Delivering an Outcomes-based NHS: Creating the Right Conditions. This OHE Seminar Briefing summarises a seminar given by Dr…