This Research Paper reports the views of 179 members of the UK general public about important aspects of health that they consider to be missing from the five dimensions of the EQ-5D instrument.

The EQ-5D is a standardised instrument designed for use as a generic measure of health outcome. It was (and is) intended to provide information about a “common core” of dimensions known to be relevant across a range of conditions, and valued highly by people. However, the five dimensions may not fully capture the health-related impacts of certain conditions. This study analyses the views of a sample of the UK general public about important aspects of health that they consider to be missing from the five EQ-5D dimensions. One-hundred and seventy-nine respondents (41.1%) provided suggestions of aspects of health they considered important but not captured by the EQ-5D. Sensory deprivation (particularly vision and hearing) and mental health (referred to either in general terms or with reference to a specific condition) were the aspects of health most commonly mentioned by respondents.

A revised version of this paper has been published in The Patient and can be downloaded from: https://link.springer.com/article/10.1007/s40271-017-0240-1

Please cite as: Shah, K.K., Mulhern, B., Longworth, L., Jansen, M.F., 2017. Views of the UK general public on important aspects of health not captured by EQ-5D. The Patient – Patient-Centered Outcomes Research, 10(6), pp.701-709.