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The Importance of Diversity of Supply in Rare Diseases Markets

EQ-5D data are often summarised by an EQ-5D index, whose distribution for its original version, the EQ-5D-3L, often shows two distinct groups in patient populations, arising from both the distribution of ill health and how the index is constructed. To date, there is…
EQ-5D data are often summarised by an EQ-5D index, whose distribution for its original version, the EQ-5D-3L, often shows two distinct groups in patient populations, arising from both the distribution of ill health and how the index is constructed. To date, there is little evidence about the distribution of the EQ-5D-5L index. This project aims to:
The results highlight the importance of undertaking careful exploratory data analysis for health related quality of life measures such as the EQ-5D, to ensure that statistical testing takes account of clustering and other features of the data distribution.
The Distribution of the EQ-5D-5L Index in Patient Populations